Blog #1- Week 2
After doing quite a bit of research regarding Muscular
Dystrophy for this research blog, I came across a story that overlapped some of
my interests along with MD. I grew up
with a heavy influence of camping, hiking, and general outdoor
experiences. It is something I am very
thankful for and plan to introduce my children to as well. Disabilities like MD can happen to anyone,
and it is important to live life to the fullest no matter what the
consequences.
For obvious reasons, MD can be make outdoor experiences more
difficult than a healthy person. For
one, you cannot make nature handicap accessible and many areas may require a
certain amount of athletic ability to access.
I found a story on the Marquez family, who have an 8 year old son that
suffers from Duchenne MD. After their
son was diagnosed, the family decided they wanted to live life to the fullest
despite their hardship. The first thing
they decided to do was hike the Half Dome in Yosemite National Park . They did this by carrying their 55 pound son
in a backpack and taking turns. This was
necessary due to the degenerative muscles the son was experiencing.
I thought this was a great story of people being optimistic
despite having a person in the family suffering from MD. I think that this story can also help to
inspire people to create experiences for children that have disabilities, like
MD. Stories like this make people
realize they can still do things they thought may have been impossible due to
unfortunate circumstances.
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